The Horror

Hi my name’s Mary and I suffer with fibromyalgia. I’m also a photographer, jewelry designer and mother to 3 children, one of whom has extreme special needs. 

Recently I was forced to go through withdrawal from Lyrica. When I realized this was really going to happen I, of course, turned to the internet. And read a very scary comment from another poor soul who was strong enough to do this. Here’s something she wrote that kept going through my mind as I was battling to keep my soul from flying away: “Every day is excrutiatingly long, with no end in sight, I can’t find the words to describe the horror of it.”

It helped me to know that someone else got through the same thing, even though she was suffering worse than I was.

Lyrica Withdrawal
Terrifically terrified

 To make a long story short, my insurance got screwed up, so when I went to pick up my Lyrica prescription, it cost $667.00 instead of $1. That’s for a one month supply. Needless to say, I couldn’t afford that, especially right before Christmas.

Walgreens Santa
Christmas, when even Santa’s for sale.

I had absolutely zero supply. CVS has this weird policy where, for certain drugs, you’ve got to wait until about two days before you’re going to be out of medicine. I don’t know why this applies to Lyrica, because it sure as heck doesn’t get me high! But it does block pain, which has been miraculous for me.

I prefer to fill my prescription about a week before needed, in case of emergency. Walgreens let me do this. I love Walgreens, but they stopped taking my insurance. So now I have all of my sons meds at Walgreens and my daughter and I at CVS. I feel like I’m constantly running around trying to obtain one medicine or another. Just dealing with my son Chance’s medicines feels like a full time job!

Medicine show
They ask for this when I pick up certain meds.

I knew that I was going to be suffering without Lyrica and I caused a bit of a ruckus at CVS. So sorry to the CVS employee who I was yelling at. It certainly wasn’t your fault and all I can do is apologize. 

I was anticipating a very, very uncomfortable several days, but really it feels like torture. There are cold sweats, nausea, insomnia, panic and dread. I especially hate the sensation of everything on my skin feeling like sand paper, even my necklace, which I usually never take off. And that oh so familiar pain started creeping back. It goes so deep, my bones hurt!

Lyrica
That’s me on the far left, then my sisters, Anne Marie, Eileen and Kathy. The bride just had her fourth child! And she’s still, 15+ years later,  just as beautiful, inside and out.

My family sustained me through this ordeal and I am so thankful to them. Eventually, after 4 1/2 days of suffering, I was able to get some samples from my doctor and started slowly feeling better.  Thanks Doc! I’m terrified that when Trump gets into office my insurance will be taken away and I’ll have to go through the same thing, and then live in constant pain. 

The marks humans leave are too often scars.

John Green – The Fault in Our Stars


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